St. MatthewSpina Bifida and Hydrocephalus Support Alliance Uganda

The Child With the “Big Head” Isn’t Cursed. Here’s What’s Actually Going On. Un-earthing the reality of Spina Bifida and Hydrocephalus in Uganda.

Let’s talk about two conditions that affect thousands of Ugandan children every year, that are almost never discussed in public, and that most communities still explain with witchcraft. Spina bifida. Hydrocephalus. You’ve probably seen a child with one or both. You may not have known what you were looking at. And if you live in […]

The clinic alone is not enough, the Community is the Cure. Lessons for Spina Bifida and Hydrocephalus care in Uganda

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During this week’s community engagement meeting with local actors in the Spina Bifida and Hydrocephalus ecosystem in Mukono district, a sub county based health worker mentioned something that got us reflecting even more deeply about how much of the resources we have, in out community that we under-utilize when it comes to supporting children with

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