Our Mission
‘…truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.’
— Matthew 25:40-45.
These words - spoken to the forgotten, the overlooked, the ones society passes by - are the founding heartbeat of St.Matthew SBHA. They speak a truth that transcends religion; that the measure of any community is how it treats its most vulnerable members. For us, those members are children born with Spina bifida and hydrocephalus in Uganda, and the families who carry them.
Our Mission: To ensure that every child born with Spina Bifida and hydrocephalus in Uganda survives, thrives, and belongs - through healthcare, education, and family empowerment rooted in community.
Our Values
Our Approach
Most organisations working in disability focus on the child. We do too. But we have learned from 162 families, from years of sitting in homes and community meetings and clinic waiting rooms across Uganda, that the child cannot be reached without first reaching the world around them. A child born with spina bifida or hydrocephalus in Uganda faces two crises simultaneously. The first is clinical. Their spine, their brain, their mobility, and their bladder all demand specialised medical care that most families cannot access, afford, or even know to seek. The second crisis is invisible in clinical records but devastating in practice. It is the crisis of meaning. Why did this happen? What did we do wrong? Is this a curse? These are not questions medicine answers. But they are the questions that determine whether a family brings their child to a hospital or to a faith healer first. Whether they follow the doctor's instructions or abandon them when a pastor says God will heal instead. Whether a mother finds community support or spends years in silent, spiritually induced shame. Our data tells us that 62% of the families we serve delayed clinical care because they consulted a faith healer first. That 55% have struggled to maintain treatment because faith-based directives pulled them away. These are not failures of individual families. They are the predictable outcome of a faith ecosystem spanning churches, mosques, and traditional spiritual leaders that shapes how Ugandan communities understand suffering, disability, and the human body. That ecosystem cannot be bypassed. It must be engaged. This is what makes St. Matthew SBHSA different. We integrate specialised healthcare, inclusive education, and family empowerment not as three separate services, but as three interconnected responses to a single, complex reality. At the centre of everything is the caregiver, almost always a mother, who carries this child's survival on her back and this community's judgement on her spirit. Her mental health, her dignity, her economic capacity, and her social belonging are not secondary concerns. They are the infrastructure on which the child's future is built. We are also unapologetically in the business of changing minds. Not by confronting faith communities but by working within them. When a pastor understands spina bifida as a neural tube defect that folic acid can prevent, not as a curse, and says so from a pulpit, more changes in one Sunday morning than years of clinical outreach can achieve. Converting sources of stigma into platforms for truth and inclusion is not peripheral to our work. It is the work.
Ms. Viola Nakirunda - President and Executive Director
Viola Nakirunda is the founding President and Executive Director of St. Matthew SBHSA. With direct leadership of an organisation serving over 162 families across Uganda, she brings frontline experience in navigating the intersection of disability, community stigma, and faith-driven barriers to care in low-resource settings. She is a committed advocate for faith-sensitive, community-embedded approaches to disability inclusion and caregiver mental health support across sub-Saharan Africa.
Mr. Patrick Jude Mugisha - Co - Founder and Program Advisor
Patrick Jude Mugisha co-founded St. Matthew SBHSA following the birth of Matthew in June 2023. He concurrently serves as Executive Director of the International Foundation for Recovery and Development (IFRAD Uganda), working across disability inclusion, community recovery, and post-conflict development in East Africa. His work at St. Matthew SBHSA focuses on evidence generation, stakeholder engagement, and translating caregiver field insights into programme and policy action
No Child should disappear after leaving the hospital.
Join us in building a system where every child with spina bifida and hydrocephalus in Uganda, survives, thrives, and belongs.
